The passing of time is strange. Right after Abby died I remember talking with other parents who lost children three years ago or longer and having a hard time processing that. At the time the grief was so fresh and raw that I couldn't comprehend living with it for a three weeks, let alone three …
Today marks 2 months since I lost my Abigail and our lives were sent into a tailspin. During my journey with her and our fight against this awful cancer, people always were ready to give us advice on a variety of topics that ranged from the crazy to the helpful. We had people reaching out …
(I wrote this on 6/17/17) I sit here trying to write my daughter's obituary with a glass of vodka and no idea what I want to say. I KNOW what I'll eventually say and write about her, all glowing things about her kind personality and the basic details of the short life she got to …
The hardest part of this whole journey has been the lack of options. Or rather the lack of good options that give you a fighting chance against this disease. The options you get are either; wildly experimental, proven to have little to no benefit or require major surgery with only a small chance of extending …
For a guy that has spent the better part of his adult life living in the same town, I have had an obsession with traveling since I can remember. Before my 21st birthday I had visited places like; Australia, Guatemala, Jamaica, Mexico and a large contingent of the lower 48 states. When I was 16 years …
You can lull yourself into a false sense of security when a loved one is fighting cancer. You'll have days that are so good that you can't believe the diagnosis you heard months ago is real. You'll convince yourself that someone must have made a colossal mistake and this has all been a bad dream. …
Since our initial diagnosis in September, Rachel and I have been thrown into the world of pediatric cancer and more specifically DIPG. Since DIPG is so rare, it has developed a close-knit community driven by advocates and parents (both current fighters and former warriors.) Since the words are first spoken that your child has terminal …
People tell me almost every week to "live in the moment" and "make every day count" as phrases of comfort. When people say this, you realize that it's from a place of love and support, but even more importantly you realize that it's a very honest truth about life and death that people only seem to know …
The thing I remember the most in the seconds after Abigail's initial diagnosis on September 19th was how quickly my mind started racing and thinking about all of the signs I had noticed (or didn't notice) before I stepped into that small, windowless conference room on the 19th floor. I felt like Chazz Paleminteri in The Usual …
I would be remiss to not thank you all for the kind words you have passed along about my last post and my idea to start this blog to help me cope with what I am going through. Every word was appreciated and it helped remind me of a few things, important things, that I …
Another Day 